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| A NOTE ABOUT BRAIN INJURY
The symptoms of brain injury can be confusing for both the injured person
and the people around them. There is no nice, neat list of problems and
cures, no schedule of how soon you will be better, or of how much better you
will get. Some problems may disappear over time, others will improve but
never go away. If you are the survivor, people around you--even those who
love you--may not understand why you act so different when
you look fine. It can be difficult for an injured person to
recognize and accept their own limitations, much less explain them. They
may think everything will be fine if they just "pull themselves together."
Unfortunately, that rarely works. Ignoring the problems just leads to
more frustration and it can even be dangerous. We hope you find these pages helpful in your journey to
understand your situation. Keep reading for a basic explanation of traumatic
brain injury and to learn about the kinds of accommodations that have worked
for some survivors.
WHAT IS TBI?
Brain injuries can be the result of
accident, aneurism, tumor, brain surgery, and other trauma. You might hear the
terms:
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Traumatic Brain Injury
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Closed Head Trauma
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Mild Traumatic Brain
Injury
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They are different words for the same problem: the brain was injured
so that in some ways it cannot work the way it did before. The doctors call
it closed head trauma because the skull is intact. They call it
mild traumatic brain injury because the parts of your brain that
supervise your vital life functions still work, so the injury is not life
threatening. For the victim, however, the injury may cause problems that do not seem
mild at all.
There are
many effects of TBI. Symptoms can be temporary or permanent, mild or
severe. Some of the symptoms may not show up for several days, or even for
several weeks. Symptoms
can also change over time after an injury. Because the brain is complex,
every person's injuries are different. Some common problems for
people who suffer from TBI are:
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headaches
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fatigue and confusion
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vision or hearing problems
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loss of coordination and balance
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memory problems and "losing" words
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trouble organizing thoughts and tasks (linear thinking)
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trouble with numbers and dates
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emotional turmoil (anxiety, depression,
anger)
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inappropriate behavior
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Some people are able to continue working, some have to change
jobs, some are not able to work at all. Children who have a traumatic brain injury may
have special needs to cope with school. If the injured person and their
support people do not understand the problems are real and not "just in your
head," relationships will
suffer. TBI victims usually need a lot of physical rest, and lots of extra
time to process information. In other words, they need to conserve their
energy.
Most people don't
understand TBI. Doctors used to believe that once the brain was damaged, it
could not be healed. Now they know better. Researchers get new information
every day about how the brain works. The brain does not heal as simply as
bones or skin, but it has an amazing ability to adapt and compensate. There
is help available through medication, counseling, good self-care, and
different kinds of therapy to help the brain learn new ways to do things.
There are strategies and tools to help a person remember and organize
information so they can continue to do things for themselves. Living with a
traumatic brain injury is challenging, but not hopeless.
If you have been injured, it is very
important to have a good support team that includes friends and family,
medical professionals, counselors and social workers, and sometimes even an
attorney. Don't try to be tough and do it alone! There will be many things
to remember and understand. Your support team can help you cope with forms
and medical information, schedule appointments, provide transportation, and
help you organize your home and manage chores to ease your stress. Most
importantly, they can give you valuable feedback about how you are doing
and encouragement when things are difficult.
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